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Alstrom syndrome is an inherited condition which affects many body systems.

Usher syndrome is an inherited condition that affects both hearing and vision.

As part of Retina UK's birthday celebrations, we would love for you to face your fears by taking on a skydive for us!

• Extreme Challenges
• Various

These very rare syndromes (NARP, Bassen-Kornweig, PXE, Norrie) affect the eyes as well as other parts of the body.

This edition of Look Forward includes the very latest news about an experimental therapy by Retina UK funded researchers, an article about one of our PhD students, a calendar of events in 2025, the usual research news round-up and lots more. Please take the time to complete our Sight Loss Survey, enclosed with this edition. You can find out more about the Survey.

• Look Forward
• Audio
• Written

Welcome to the winter edition of Look Forward. It’s packed full of news from our Conferences, the latest research news and an interview with Hassina Zeriri, one of our funded PhD students. We have also included details of lots of ways you can get involved with Retina UK over the coming months, along with some suggested festive fundraising for the Christmas period.

• Look Forward
• Audio
• Written

Leber Congenital Amaurosis (LCA) is a rare genetic eye disease that appears at birth or in the first few months of life.

Saturday 24 May, 11am onwards - In-person - Please come and join Perm and the group for a fascinating day out at the West Midlands Police Museum.

• Local Peer Support Group

Mark your special day, whilst fundraising for people with inherited sight loss.